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Thank you for taking the time to learn about Tobin’s Journey.

We have provided some helpful links regarding Canavan disease.

We would appreciate it if you could donate or share to help save Tobin Grace. 

 

If you would like to have your Canavan story featured as well, please email canavan.disease.sucks@gmail.com.

Sharing Tobin’s story, and donating to help fund the trials, can help to spread awareness about Canavan Disease. Please join our fight for this ultra-rare progressive genetic disease.

You could be the person that shares this information with the right set of eyes. You could be the right set of eyes. Hit DONATE, and BE THE RIGHT SET OF EYES!

Anything you can donate helps us get closer to our goals of helping to fund the development of a cure for Canavan Disease.

Hitting Share helps spread awareness, which is just as vital as donations.

Tobin thanks you!

Please keep all comments respectful, trolling will not be tolerated. Spam comments will not be tolerated either.

 

Social Media

Here’s our recent posts on Tobin’s Journey:

22 hours ago

Tobins Journey

Tried new tastes today! Tomato soup and broccoli and cheddar soup! Eh she wasn’t to excited about either but we tried!! #tobinstime #canavandisease #curecanavan #newfoods #newtastes ...

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2 days ago

Tobins Journey

⭐️ Tobin Challenge ⭐️

Tobin’s GoFundMe is almost to $45,000!!

Tobin would like to challenge everyone to help get her GoFundMe to $45,000 by the end of the weekend 🙌🏻 We can do this!!

www.gofundme.com/save-tobin-grace

SHARE SHARE SHARE 🥰
...

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4 days ago

Tobins Journey

For about the last 2 months we have struggled with getting Tobin to sleep and stay asleep! After getting the ok from her neurologist we decided to try melatonin! Last night was amazing Tobin was out by 10pm and slept all night 🙌🏻 #tobinstime #curecanavan #canavandisease #goodsleeps ...

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6 days ago

Tobins Journey

Lately I have been posting happy stuff because yes Tobin is so incredibly happy and she amazes me everyday. The brutal fact still stands as seconds, minutes, hours, and days pass her brain is failing her. This acid in her brain that her little body can’t fight off on its own because of one little enzyme is deteriorating her little brain. The words we heard over a year ago still haunt me “no treatment, no cure.” I have always wanted to be a mom and to be honest I’m a damn good mom but how long will that last. Yes I will always be Tobins mom but how long do I get to be her mom while she’s still here? That question makes my stomach ache so incredibly much. I begged Heath for a baby for many years and one day it happened we found out we were going to be mommy and daddy. Such an exciting moment but little did we know what the future had in store for us. The future is nothing I like to think or even talk about because with this disease it’s day by day. So much can happen in a short amount of time and I’m not ready for the future! I want my baby girl in my arms forever and knowing that that possibly won’t happen kills me. Tobin is amazing she has showed us how strong she is and has gained so much in the past couple weeks. The reality is with out treatment Tobin will lose all she is gaining, it’s not fair! I am fighting as hard as I possibly can to save my baby girl but that doubt always kicks in and hits me hard in my stomach. So many what ifs run through my head daily it’s hard to keep on but looking at her sweet little face gives me the motivation to fight for her. I am a mom fighting to save my child’s life! Thank you all for your love and support ❤️ #tobinstime #fucanavan #curecanavan #canavandisease #savemybaby #forevermylove #iwillnotstopfighting #savetobingrace ...

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Here’s some of our recent pictures:

This Song was written by Nicole Miranda and sang by Brooke Harmer:

I am so thankful for the people in our life’s!! ⚠️grab your tissues⚠️This song was written by Nicole Miranda and sang by Brooke Harmer!! Thank you two so incredibly much!! It’s truly amazing 🙌🏻Please donate at: https://www.gofundme.com/save-tobin-grace

Posted by Tobins Journey on Thursday, January 3, 2019

 

THANK YOU FOR TAKING THE TIME TO LEARN ABOUT TOBIN GRACE.

THANK YOU FOR HELPING TO RAISE AWARENESS AND FIGHT FOR A CURE FOR CANAVAN DISEASE.

WE APPRECIATE YOU BEING PART OF OUR VILLAGE!

TOGETHER, WE CAN!