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Thank you for taking the time to learn about Tobin’s Journey.

We have provided some helpful links regarding Canavan disease.

We would appreciate it if you could donate or share to help save Tobin Grace. 

 

If you would like to have your Canavan story featured as well, please email canavan.disease.sucks@gmail.com.

Sharing Tobin’s story, and donating to help fund the trials, can help to spread awareness about Canavan Disease. Please join our fight for this ultra-rare progressive genetic disease.

You could be the person that shares this information with the right set of eyes. You could be the right set of eyes. Hit DONATE, and BE THE RIGHT SET OF EYES!

Anything you can donate helps us get closer to our goals of helping to fund the development of a cure for Canavan Disease.

Hitting Share helps spread awareness, which is just as vital as donations.

Tobin thanks you!

Please keep all comments respectful, trolling will not be tolerated. Spam comments will not be tolerated either.

 

Social Media

Here’s our recent posts on Tobin’s Journey:

43 minutes ago

Tobins Journey

Yay! First time in the hot tub this year!! Tobins daddy had it set up weeks ago but our May was pretty eventful! So happy they were able to get in tonight! Tobin is definitely a water baby!!

#tobinstime #curecanavan #canavandisease #hottubtime #otteroobaby #waterbaby #specialnotneedy #abilitiesnotdisabilities
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4 hours ago

Tobins Journey

I mean I know I’m her mommy an all but seriously it amazes me how beautiful my baby is!!!

I’m so glad it’s finally nice outside to be out!! Does anyone have a magical solution to get rid of the nasty gnat!?

#tobinstime #curecanavan #canavandisease #summer #sunshine #specialnotneedy #abilitiesnotdisabilities
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8 hours ago

Tobins Journey

It’s that time of year!! Contact Stadium Cuts LLC for your lawn care needs!!

We are so incredibly thankful not only are they doing this for our family but they went and mowed our lawn while Tobin was in the PICU!! So much love for them 🥰
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9 hours ago

Tobins Journey

Tobin was so happy to be outside and see all the animals at Bloomsbury Farm Baby Animal Festival! If you can’t make it out today, they will be here all week!!

#tobinstime #curecanavan #canavandisease #babyanimals #mybumblebee #specialnotneedy #abilitiesnotdisabilities
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1 day ago

Tobins Journey

I think it safe to say this sugar bear is almost 100% better!! It’s been a long week Tobin couldn’t handle us touching her head she would start crying 😭 and that’s how we usually comfort her but tonight in her bath she kicked and floated around till her little fingers were all prunie!! she even let me brush most of the EEG glue out that stuff is difficult to get out!! I’m one happy mommy!!!! 🥰

#tobinstime #canavandisease #curecanavan #happybaby #stillteething
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Here’s some of our recent pictures:

This Song was written by Nicole Miranda and sang by Brooke Harmer:

I am so thankful for the people in our life’s!! ⚠️grab your tissues⚠️This song was written by Nicole Miranda and sang by Brooke Harmer!! Thank you two so incredibly much!! It’s truly amazing 🙌🏻Please donate at: https://www.gofundme.com/save-tobin-grace

Posted by Tobins Journey on Thursday, January 3, 2019

 

THANK YOU FOR TAKING THE TIME TO LEARN ABOUT TOBIN GRACE.

THANK YOU FOR HELPING TO RAISE AWARENESS AND FIGHT FOR A CURE FOR CANAVAN DISEASE.

WE APPRECIATE YOU BEING PART OF OUR VILLAGE!

TOGETHER, WE CAN!