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Thank you for taking the time to learn about Tobin’s Journey.

We have provided some helpful links regarding Canavan disease.

We would appreciate it if you could donate or share to help save Tobin Grace. 

 

If you would like to have your Canavan story featured as well, please email canavan.disease.sucks@gmail.com.

Sharing Tobin’s story, and donating to help fund the trials, can help to spread awareness about Canavan Disease. Please join our fight for this ultra-rare progressive genetic disease.

You could be the person that shares this information with the right set of eyes. You could be the right set of eyes. Hit DONATE, and BE THE RIGHT SET OF EYES!

Anything you can donate helps us get closer to our goals of helping to fund the development of a cure for Canavan Disease.

Hitting Share helps spread awareness, which is just as vital as donations.

Tobin thanks you!

Please keep all comments respectful, trolling will not be tolerated. Spam comments will not be tolerated either.

 

Social Media

Here’s our recent posts on Tobin’s Journey:

4 hours ago

Tobins Journey

Our fight to save our children is world wide! 🌎

We will save our babies!!

We need your help!!

🧬
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View on Facebook

2 days ago

Tobins Journey

Here are the BRAVE children that are waiting for gene therapy!

As minutes, hours, days, weeks and months pass that these children don’t receive gene therapy this horrible disease is progressing taking away precious time!!

Your donation will save them!!!!

Together we will raise this money to help save these kids! I’m one desperate mom trying to save my baby girl to have more precious time with her! The thought that one day I could lose my baby hurts so bad! The researchers have been working so hard and dedicating so much time so we won’t have the fear of losing our children!! We will fund this!!

Please take a moment to watch this video I have put together! The song is absolutely amazing and heart touching!

This song was done by Sean Gaiser who’s daughter Dolly also has Canavan Disease!

Song: Brave by Sean Gaiser

Curecanavanfund.org

Venmo: @SavingTobinGrace

paypal.me/pools/c/8gxg2rRVM7

www.gofundme.com/save-tobin-grace
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View on Facebook

3 days ago

Tobins Journey

Thank you to everyone that showed up to Tobin ride today!! It was a blast!!

I’m in shock how many people showed up today to support Tobin!!

Thank you to everyone that made today possible!

#tobinstime #curecanavan #canavandisease #benifitride #harleydavidson #savingtobingrace #motorcycle #sothankful
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View on Facebook

4 days ago

Tobins Journey

Don’t forget about Tobin’s ride tomorrow!!!

So excited to see everyone!!

❤️

www.facebook.com/events/456441634908293/?ti=iclDon’t forget to tell your friends and have your friends tell their friends about Tobins ride on September 14th!!!

We are so excited we can’t wait to see everyone!!

www.facebook.com/events/456441634908293/?ti=icl

❤️
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View on Facebook

Here’s some of our recent pictures:

This Song was written by Nicole Miranda and sang by Brooke Harmer:

I am so thankful for the people in our life’s!! ⚠️grab your tissues⚠️This song was written by Nicole Miranda and sang by Brooke Harmer!! Thank you two so incredibly much!! It’s truly amazing 🙌🏻Please donate at: https://www.gofundme.com/save-tobin-grace

Posted by Tobins Journey on Thursday, January 3, 2019

 

THANK YOU FOR TAKING THE TIME TO LEARN ABOUT TOBIN GRACE.

THANK YOU FOR HELPING TO RAISE AWARENESS AND FIGHT FOR A CURE FOR CANAVAN DISEASE.

WE APPRECIATE YOU BEING PART OF OUR VILLAGE!

TOGETHER, WE CAN!