Canavan

Clothing, Events, & Additional Opportunities

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  As always, the GoFundMe is a great place to donate.  Click HERE! CLOTHING     Tobin’s Time Clothes/Property of Tobin’s Team – LiveNow Designs A portion of sales will be donated back to Tobin. Wearing Tobin gear can help to raise awareness – show your support!  ORDER HERE!           Finding a Cure – Canavan Disease Awareness (Bonfire) Proceeds from these shirts (available in multiple styles and colors) will go towards […]

Canavan

Who is Tobin?

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Who is Tobin? Meet Tobin Grace Hansen, a beautiful 16 month old baby girl. She is the daughter of Meagan Rockwell and Heath Hansen. Their daughter suffers from a genetic progressive childhood brain disease. Tobin is missing a gene that is responsible for breaking down an acid in her brain. Without the gene, the acid is causing deterioration of the white matter in her brain. Everything seemed perfectly fine when Tobin was first born. It […]

Canavan

Canavan Disease

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So what is Canavan Disease? Canavan disease is a rare, inherited, genetic disorder. It damages the ability of nerve cells (neurons) in the brain to send and receive messages. This disease is one of a group of genetic disorders called leukodystrophies. Leukodystrophies disrupt the growth or maintenance of the myelin sheath. The myelin sheath is the covering that protects nerves and promotes the efficient transmission of nerve impulses. In Canavan disease there is a mutation […]